180 millions deuros pour les maladies rares

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first_img180 millions d’euros pour les maladies raresCe lundi, la ministre de l’Enseignement supérieur et de la Recherche Valérie Pécresse, ainsi que Nora Berra, secrétaire d’Etat à la Santé devraient annoncer conjointement le nouveau plan gouvernemental de lutte contre les maladies rares qui sera doté de 180 millions d’euros.Les maladies rares sont ces affections qui ne touchent que peu de personnes à la fois, jamais plus de 3.000. Souvent, du fait de leur faible impact, ces maladies ne connaissent pas de traitement au grand désarroi des victimes et de leur famille. De plus, les laboratoires pharmaceutiques ne s’y intéressent que très peu. Mais la lutte contre les maladies rares est un objectif gouvernemental.À lire aussiLe président brésilien récompensé pour sa lutte contre le SidaLe plan gouvernemental voulu par Valérie Pécresse et Nora Berra concernerait la période 2011/2014 et devrait être doté de 180 millions d’euros, notamment alloués à la recherche. Si dans l’entourage de la ministre de l’Enseignement supérieur et de la Recherche on explique que “la France a eu un rôle pionnier dans la recherche sur les maladies rares”, du côté de l’Association française des myopathie, la présidente Laurence Tinnot-Herment, explique au Parisien : “Cela va dans la bonne direction, mais ce n’est pas suffisant. Les besoins pour financer les maladies rares sont de 800 à 900 millions d’euros pour les six ans qui viennent (…) l’Etat doit financer davantage de structures de prise en charge des malades, notamment des établissements médico-éducatifs spécialisés, dont nous manquons cruellement”. L’annonce de ce plan gouvernemental se fait aujourd’hui à l’occasion de la 4e journée internationale des maladies rares. La secrétaire d’Etat à la Santé a expliqué au quotidien La Croix qu’il prévoyait “47 mesures” et serait “articulé autour de trois axes forts : améliorer la qualité de la prise en charge des patients, développer la recherche et amplifier les coopérations européennes et internationales (…)”.Le 28 février 2011 à 14:45 • Emmanuel Perrinlast_img

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